Occupational Therapy and Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy (DMD) is the most common and usually most severe form of muscular dystrophy. It is an inherited disorder, caused by a defective gene and rapidly progresses to muscular weakness and skeletal deformities, which contribute to frequent breathing and heart disorders. Increasingly, occupational therapists (OTs) are called upon to work with those with the condition and their family in the early stages of DMD, and then through to the middle and late stages. Written by experienced OTs with a specialist interest in DMD, the book:
· Provides a medical overview and the OT process for working with people with DMD
· Examines the psychosocial and emotional impact of DMD
· Includes case studies of four young men living with the condition
· Details the care needs of the individual from pre–school to young adults living independently
· Looks at issues of moving and handling, community care, leisure, housing, education and employment
· Discusses the role of the hospice, anticipatory grief and bereavement.
This practical guide is a resource that facilitates a flexible and informed clinical approach to occupational therapy with this client group. It will assist occupational therapists in all practice settings, healthcare professionals and provide a reference for referral for doctors. It also provides useful information for the families of young people with the condition.


Spis treści:
Contributors.
Preface.
Acknowledgements.
1 Duchenne Muscular Dystrophy: A Medical Overview (Alex Howarth).
2 The Occupational Therapy Process (Kate Stone, with Claire Tester and Mary McCutcheon).
3 The Psychosocial and Emotional Impact of Duchenne Muscular Dystrophy: Some Considerations (Claire Tester).
4 From our Point of View: From Young Men with Duchenne Muscular Dystrophy, as Shared with Claire (Claire Tester).
5 Pe rsonal Activities of Daily Living (Alex Howarth, Ruth Johnston, Heather McAndrew and Nicola Traynor).
6 Seating (Joy Blakeney and Ruth Johnston).
7 Moving and Handling (Kate Stone and Claire Tester).
8 Occupational Therapy in Education (Alex Howarth, Heather McAndrew, Mary McCutcheon and Nicola Traynor).
9 Learning and Behaviour Diffi culties (Claire Tester).
10 Leisure and Play (Kate Stone).
11 Community Care (Kate Stone).
12 Housing Issues (Kate Stone).
13 Social Needs: An Overview (Claire Tester).
14 Employment (Kate Stone).
15 Transport (Kate Stone).
16 Bereavement and Anticipatory Grief (Claire Tester).
17 The Role of the Hospice (Claire Tester).
18 In Conversation with Occupational Therapists (Claire Tester).
19 The Future (Claire Tester and Dr Alison Wilcox).
Appendix I.
Appendix II.
Appendix III.
Appendix IV.
Appendix V.
Appendix VI.
Appendix VII.
Appendix VIII.
References.
Bibliography.
Index.

Nota biograficzna:
Joy Blakeney, Dip COT, Senior Practitioner, Paediatric Community Occupational Therapist, formerly of West Lothian Council Social Work Department.
Alex Howarth, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.
Ruth Johnston, BSc (Hons) Occupational Therapy, Senior Occupational Therapist – Child Health, NHS Fife.
Heather McAndrew, BSc (Hons) Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Borders.
Mary McCutcheon, Dip COT, Senior Paediatric Occupational Therapist, formerly of Ashcraig School, Glasgow.
Kate Stone, Dip COT, MSc (MedSci) in Palliative Care, Senior Practitioner, Paediatric Community Occupational Therapist, Inverclyde Council Social Work Services.
Clair e Tester, Dip COT, PG Dip, AHP Consultant in Cancer for Scotland, Scottish Executive on secondment from the Children’s Hospice Association, Scotland (CHAS).
Nicola Traynor, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.

Okładka tylna:
Duchenne Muscular Dystrophy (DMD) is the most common and usually most severe form of muscular dystrophy. It is an inherited disorder, caused by a defective gene and rapidly progresses to muscular weakness and skeletal deformities, which contribute to frequent breathing and heart disorders. Increasingly, occupational therapists (OTs) are called upon to work with those with the condition and their family in the early stages of DMD, and then through to the middle and late stages. Written by experienced OTs with a specialist interest in DMD, the book:
· Provides a medical overview and the OT process for working with people with DMD
· Examines the psychosocial and emotional impact of DMD
· Includes case studies of four young men living with the condition
· Details the care needs of the individual from pre–school to young adults living independently
· Looks at issues of moving and handling, community care, leisure, housing, education and employment
· Discusses the role of the hospice, anticipatory grief and bereavement.
This practical guide is a resource that facilitates a flexible and informed clinical approach to occupational therapy with this client group. It will assist occupational therapists in all practice settings, healthcare professionals and provide a reference for referral for doctors. It also provides useful information for the families of young people with the condition.