Genomics and Society: Ethical, Legal, Cultural and Socioeconomic Implications

Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011.

The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system.

Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine.

Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare systemDescribes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more

1. Preface: Genomics and Society – A Visionary Approach
2. Personal Genomics and its Sociotechnical Transformations
3. Genetics, Genomics and Society: Challenges and Choices
4. Genomics and patient empowerment
5. Ethical issues in Health and Social Genomics
6. Health economic perspectives of genomics
7. Legal aspects of health applications of genomics
8. Genomics, Patents and Human Rights
9. Teaching genetics and genomics for social and lay professionals
10. Engaging and empowering public and professionals in genomics
11. The ‘life costs’ of living with rare genetic diseases
12. The bioeconomy, genomics and Society
13. Socio-economic outcomes of genomics in the developing world
14. Roles of genomics in addressing global food security
15. The integration of genomics in the traditional Indian medical practice of Ayurveda
17. Genomics and Traditional Chinese Medicine
18. Human genetics and genomics and the socio-cultural beliefs and practices in South Africa
19. Genomics and Spirituality
20. The socio-demographic and economic correlates of consanguineous marriages in highly consanguineous populations
21. The international law and regulation of medical genetics and genomics